Hello. I hope you find some information you can use, or make a friend, learn something new, share your wisdom, tips, struggles, and successes!
I will provide a link (on the left) where I share Elena's story. I'm a part of that story, being mom and all, but it really is her story. I'm currently working on that, and within a few days, I hope to have it available to you.
You will also not find commerical advertisements on my blog. I refuse to allow sponsors banners and pictures blinking and flashing all over the place! It's not that I'm against advertizing, but when I do decide to put an ad on here, I'm very particular. Do you have your own website or blog? I'd be glad to put a link here. If you own a web based business, such as a craft or hobby, I'd also be glad to add that as well. Feel free to leave a link to your site or email address.
My goal for the Cerebral Palsy Network is to start out with a blog, and hopefully expand it to a fully functioning website. My goal is to provide up to the minute news and information. And with that information, I promise to take great care in providing accurate, relevant and tested information. I will not provide medical advice, but will pass along information when I can verify it's accuracy.
Please stop back soon as I'll be updating regularly. I have already provided a few CP related links, and will add them when I determine that the content is valid.
Thanks!
Jill
What is Cerebral Palsy?
Cerebral palsy (CP) is the name given to a collection of movement disorders. Movement disorders are conditions in which a person's muscles do not respond normally. CP is also known as static encephalopathy. It is caused by brain damage that occurs before, during, or just after birth. A person with CP is often also affected by other conditions caused by brain damage.
If a person is affected by CP his or her muscles may become either rigid or very loose. Sometimes an individual may lose control of his or her muscles, resulting in problems with balance and coordination. The condition may affect the legs only, which is called paraplegia or diplegia; the arm and leg on one side of the body, which is known as hemiplegia; or all four limbs, called quadriplegia.
Other problems experienced by someone with CP include visual or hearing problems, mental retardation (see mental retardation entry), learning disabilities (see learning disorders entry), and attention deficit disorder (ADD). Some CP patients experience no problems beyond their movement disorder.
CP affects about 500,000 children and adults in the United States. About 6,000 new cases are diagnosed in newborns and young children each year. CP is not a genetic disorder, and there is currently no way of predicting which children will develop it. CP is not a disease and is not communicable, which means it cannot be passed from one person to another.
CP is a nonprogressive disorder. That is, it does not become better or worse over time. However, some conditions may appear to become worse. For example, when muscles are rigid for a long period, arms and legs may become deformed. In such cases, additional treatments may be necessary.
Source: http://www.faqs.org/health/Sick-V1/Cerebral-Palsy.html
Tuesday, March 20, 2007
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11 comments:
Jill,
I was looking at other messages on a Yahoo Special Needs board abd I happened to see yours.
I ended up following thru on your link, so that I could view your web page...you have done a magnificent job.
I am a family advocate and I must sat that your site tells it like it is, with emotionas. logic and all the rest of it.
Kepp up the good work!
Thanks for the valuable information on Cerebral Palsy that you are sharing with rest of the world. You can also find some good information about cerebral palsy at http://www.about-cerebral-palsy.org/. People with cerebral palsy can find out if they are eligible for lifetime benefits, and get free advice from doctors.
Thanks for your valuable information
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Another resource that I would personally recommend would be the Cerebral Palsy Family Network. They have a free online Survival Guide that lists cerebral palsy resources by geographic target area.
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